Tag Archive: 1 in 88

May
25

Behind Closed Doors

These are the Members of the Senate Armed Services Subcommittee on Personnel. These are the people who decide behind closed doors whether or not to accept an amendment similar to the one we passed last week in the House that will give our children the autism treatments we have been waiting for. Behind closed doors.  When no [...]

Apr
05

Military Families Find HOPE Aboard USS Intrepid

New York – On Saturday, March 31, Autism Speaks honored military families living with autism aboard the USS Intrepid Sea, Air and Space Museum.  My head is still spinning and I am still processing the HOPE I stumbled upon that day.  I have so much to tell you and I want to share this HOPE [...]

Mar
26

April is Autism Awareness Month AND Month of the Military Child

I’m over at the Autism Speaks Official Blog today talking about the complex issues facing access to autism care for military families and why HR2288 – Caring for Military Kids with Autism Act is so critical.  April is coming and there are so many ways to get involved in spreading awareness whether blue lights on [...]

Mar
08

Surprise! We’re Polygamists!

Last year on this day, I wished my husband a Happy 8th Anniversary. Today I seek to do the same, only I’ve decided to unleash our skeletons from the closet and announce to all of you that we are Polygamists. Yes.  You read that correctly. No.  It is not another woman.  Or another man. Nine [...]

Mar
03

EPIC FAIL: Soldier in Afghanistan = Deadbeat Dad?

Deadbeat Dad? Or Deadbeat Country?  

Feb
17

You’re a FIVE-Star in My Book

One-click YOUR kick-ass advocacy skills at CMKAA.org.  Tell your US Rep to sign on to HR2288 Caring for Military Kids with Autism Act. Hooah.

Feb
07

Late Bloomer

“I want to tell you that Rachel is incredibly special in so many ways, and yet I want you to know that she’s not special at all.  I want you to know that there is nothing in her that is not in each and every single one of us, and that once it’s awakened, it [...]

Feb
04

Military Families with Autism Finally Make it to ‘The Show’

Click –> HERE <– to see the coverage of HR2288 on Andrea Mitchell Reports on MSNBC TRICARE does not cover autism therapies. A separate arm of services called the Extended Care Health Option (ECHO) which is secondary to enrollment in the Exceptional Family Member Program (EFMP) does offer what amounts to an average of 11 hours [...]

Feb
04

Military Families with Autism Finally Make it to ‘The Show’

[Click above image to see coverage of HR2288 on Andrea Mitchell Reports MSNBC] TRICARE does not cover autism therapies. A separate arm of services called the Extended Care Health Option (ECHO) which is secondary to enrollment in the Exceptional Family Member Program (EFMP) does offer what amounts to an average of 11 hours of ABA therapy per week – [...]

Feb
02

The Briefing

I tried very hard to remain calm the days before the briefing.  My speech had been finished for weeks.  I felt confident that I had done all I could to promote the briefing and fill the room.  But I was still overwhelmed on the inside.  The stress was enormous, the pressure to do right by [...]

Feb
02

The Briefing

I tried very hard to remain calm the days before the briefing.  My speech had been finished for weeks.  I felt confident that I had done all I could to promote the briefing and fill the room.  But I was still overwhelmed on the inside.  The stress was enormous, the pressure to do right by [...]

Jan
31

What I Signed Up For

Of all titles I hold, Mother is the one that has brought me here today to speak to you.  I am an Army wife as well, but that is a role I chose shortly after 9/11 with full knowledge of what I was getting myself into.  War was imminent, terror threat levels were the new [...]

Jan
29

Backstage

Load-in. For most evening events it happens around 1pm.  The trucks begin to arrive and the once cavernous arena comes to life with loud thuds and shouts echoing across the stage. “Sound check! T-minus four hours! Move your ass!“ If it was a Saturday show I was psyched.  It meant I could work load-in and watch [...]

Jan
29

Backstage

Load-in. For most evening events it happens around 1pm.  The trucks begin to arrive and the once cavernous arena comes to life with loud thuds and shouts echoing across the stage. “Sound check! T-minus four hours! Move your ass!“ If it was a Saturday show I was psyched.  It meant I could work load-in and watch [...]

Jan
26

Troops in Contact: a guest post by SGM

The satellite radio crackles to life; “Iron Gray TOC, this is Butcher 6 receiving indirect fire at this time”.  The radio operator answers the call; “This is Iron Gray TOC.  Roger, requesting air support at this time.” Troops in Contact (yes that means what you think it does) were a daily occurrence as an Infantry [...]

Jan
13

#fitn

Twitter much? No? Don’t blame you.  I was a non-believer until this past summer.  It terrified me, and to a degree still seems so very strange. Twitter is the most difficult thing to describe to a non-Tweeter.  You have these hashtag (#) thingys to follow tweets categorically.   You ‘Follow’ other people and hope somebody ’Follows’ you back. [...]

Jan
02

MIB are coming to get me now

Hi. I am pretty confident I am on a few different ‘Watch Lists’ by now.  But I’m ok with that.  Our military kids are worth it. So humor me before I am dragged away in the middle of the night by Men in Black with night-vision who drive dark Suburbans with tinted windows. Sign the White [...]

Dec
27

Xoom Giveaway for CMKAA

HOOAH! Motorola Mobility in partnership with Autism Speaks has committed to providing tech tools to families with children on the Autism Spectrum. “The long-term goal of the program is to measure and analyze how Motorola XOOM has assisted in the developmental progress of the children, and work with researchers and application developers to make even [...]

Dec
21

All I Want for Christmas

[Ed note: This was orchestrated with a simple, slow laptop. I do not own a professional recording studio. Cheers!] I don’t want a lot for Christmas, There is just one thing I need, I don’t care about the presents, Underneath the Christmas Tree, I don’t need to hang my stocking, There upon the fireplace, Santa [...]

Dec
12

OMG. If TRICARE Was Working, I’d Shut Up Already.

I shall be brief. Yes.  1 in 88.  No kidding. Seriously.  We need to fix the system of military families getting autism treatment for their kids.  Period. There is no valid arguement about CMKAA and comparing military versus civilian healthcare.  The two are separate issues and I can only fix one freaking thing at a [...]

Dec
11

Why 1 in 88?

Since I began advocating for military kids with autism, the question I am asked most frequently is:  Why are the rates of autism higher for military kids?    Is it chemical exposure?  Vaccines?  WTF? The rates are not necessarily higher, my friends.  It’s complicated. But I will start with the statistic itself and how it came [...]